16p13.3 Meet Up

 This past weekend we were fortunate enough to be able to meet up with other families that have children with the chromosomal deletion of 16p13.3 and got to meet with a doctor that is very interested in our kids too. I've been facebook friends with a few of the moms and it was so neat to finally meet them. One flew from Arizona and one drove from NC. Surprisingly there are three of us here in the Indy area. Here's all our 16p13.3 kids.

Hadley and Nolan. Our friend from Arizona. 

 Here's a video of Dr. Escobar talking to us and answering our questions. 

First Day of 1st Grade!

Derby Car

Isaac and David made a derby car and a crash course.

Naked Hermit Crab

Pictures by David Huang. We got to see this guy getting ready to change his shell. 

Survivor Chicken/Scarface

A night or two after our return David heard a chicken getting attacked at 2:30am and woke me up. This poor chicken survived, but it did get scalped. Currently it is hanging out in our garage until it gets better because the other chickens peck at its wound. David wants to rename it scarface and Isaac wants to rename it survivor chicken. Pictures by Isaac Huang

Beach Day 2

These boys caught just about everything; shark, stingray, horseshoe crab, shrimp, and some other fish that I can't remember. 

Nolan and Isaac loved the double bike. 

Nolan teaching Pawpaw how to play a video game on the phone. 

Chillin' with Nolan

While the rest of the house went fishing again, this time with Isaac.

Nolan and I did what he wanted, which was to just hang out at the house and watch tv. 

We met the rest of the crew for lunch. 

The day ended with a fillet class with David.