This past weekend we were fortunate enough to be able to meet up with other families that have children with the chromosomal deletion of 16p13.3 and got to meet with a doctor that is very interested in our kids too. I've been facebook friends with a few of the moms and it was so neat to finally meet them. One flew from Arizona and one drove from NC. Surprisingly there are three of us here in the Indy area. Here's all our 16p13.3 kids.
Here's a video of Dr. Escobar talking to us and answering our questions.